Image description: Kate’s incredibly stylish orange cane, leaning against white drawers with silver handles, on a wooden floor.
This is a Patreon reward post for Kate, and was available to patrons last week. Patreon supporters at the $10/month level get a self-care post on the topic of their choice during their birthday month. These supporters make my work possible! Especially as I head into my Master of Narrative Therapy and Community Work program, my patrons ensure that I can keep producing resources and self-care content. (And wow, there are some really great resources in production! Check back tomorrow for a post about that!)
Kate and I have known each other for a few years, and got to know each other while we were both going through some challenging times (though we didn’t actually meet in person until quite a bit later, and still aren’t able to spend as much time together as either of us might like!)
Kate has been one of my most outspoken supporters, and I appreciate how she is always willing to leap in with an offer of help or a suggested solution.
Her birthday is in January, and her topic is, “maintaining intimate relationships and partnerships with a chronic illness or chronic pain.”
I struggled with writing this post because I am experiencing my own spoon shortage. I’m in the middle of a depressive episode, have been sick for the last two months, and my fibromyalgia pain has been spiking. All of these spoon-hoarding gremlins are impacting my own relationships, challenging my sense of who I am and how I navigate the world, and putting gloom-coloured glasses on my view of the future. When I write about self-care for folks who are struggling, it’s easier when I can write about a struggle I am not currently experiencing. It’s easier if I can yell back into the labyrinth from the safety of the outside. Easier, but not always better. It is a myth that the best insights come from people who have “figured it all out” – I believe the opposite is often true. When we are in the thick of it is when we have the most relevant and meaningful insider information. Our struggle is not a barrier to our ability to help each other – it is the fuel that allows us to help each other. This is one of the key principles of narrative therapy, and as much as it challenges me, I am trying to bring it into my own life. Can I write something worthwhile from the heart of the struggle? Yes. Well, I think so. Let’s find out.
What Kate asked about was maintaining intimate relationships while navigating chronic illness or pain. In relationships where one person experiences chronic issues and another doesn’t, those issues can create a significant disparity in ability and access to internal resources. (And in relationships where multiple people are experiencing chronic issues, the pressure resulting from reduced access to resources can grow exponentially.)
Being in the position of having (or perceiving that we have) less to offer often triggers shame, fear, and stress. In my own relationships, I worry that I’m not worth it, that my partners will grow tired of me. I worry that I’m “too much.” I have heard the same worry from my clients.
This anxiety is so natural, and so understandable. Our society does not have readily accessible narratives that include robust “economies of care.” Our most common narrative has to do with “pulling our own weight” in a relationship, and our definitions of balanced relationships rely so heavily on ideas of equality rather than justice. Split the bills 50/50. Take turns washing the dishes. You cook, I’ll clean. My turn/your turn for the laundry, the diapers, the groceries.
And it becomes more complicated when we consider the intangible labour of emotional support and caregiving, which is disproportionately assumed to be the role of women in relationships with men, and, since women are also often the ones experiencing chronic pain or illness, this can compound into a messy and unjust situation pretty quickly. (To back up these claims, check out the links at the end of this post.)
Thankfully, both of these problems – the tit-for-tat approach, and the unjust division of emotional labour – are being challenged by writers, activists, and communities on the margins.
In Three Thoughts on Emotional Labour, Clementine Morrigan writes, “We can name, acknowledge, honour, perform, and yes, accept emotional labour, instead of simply backing away from it because we don’t want to be exploitative.”
This is so challenging for so many of us, because we do not want to exploit our friends, our partners, our communities. When we experience chronic illness or pain, the fear that we might slide into exploitation and “being a burden” becomes amplified. Morrigan suggests that we can ask three guiding questions about the emotional labour we are offering or accepting – Is it consensual? Is it valued? Is it reciprocated?
If we can answer yes to each – if we are discussing what we need and what we can offer, if we are valuing what we are offered and if our own offerings are valued, and if there is reciprocity – fantastic!
But what does reciprocity look like in situations where there is a disparity in access to resources?
Morrigan suggests that:
“It is important to acknowledge that some of us need more care than others. Some of us, due to trauma, disability, mental health stuff, poverty, or other reasons, may not be in a position to provide as much emotional labour as we need to receive. We may go through periods where are able to provide more emotional labour or we may always need more care than we are able to give. We may be able to reciprocate care in some ways and not others. This is totally okay. We need rich networks of emotional care, so that all of us can get the care we need without being depleted. We need communities that value and perform emotional labour—communities that come through for each other. Reciprocity is a commitment to building communities where all of us are cared for and no one is left behind; it is not a one for one exchange.”
It is not a one for one exchange.
This is so critical.
And it’s so hard to make space for this. It’s hard to see our worthiness and the value we bring to a relationship when what we offer has shifted from what we were able to offer before the chronic issue grew up within us and between us.
Not only that, but it’s often hard for our partners to recognize what we’re bringing to the relationship. Not because they don’t love and appreciate and support us, but because they are also caught within the web of accessible narratives and ableist norms.
In order to answer “yes” to Morrigan’s “is it valued?” question, we need to be able to look clearly at the work our partners, friends, and families are doing for us and acknowledge that work. And we need to be able to look clearly at our own work and speak openly about it, so that it can be valued. Neither side of this is easy.
Becoming aware of the skills and insider knowledges that we develop as we live our new pain-, disability-, or illness-enhanced lives can help with recognizing, articulating, and allowing people to value our new contributions.
In A Modest Proposal For A Fair Trade Emotional Labor Economy (Centered By Disabled, Femme of Color, Working Class/Poor Genius), Leah Lakshmi Piepzna-Samarasinha writes:
“Sick and disabled folks have many superpowers: one of them is that we often have highly developed skills around care. Many of us have received shitty, condescending, charity-based care or abusive or coercive care—whether it’s from medical staff or our friends and families. We’re also offered unsolicited medical advice every day of our lives, mostly coming from a place of discomfort with disability and wanting to “fix” us.
All of this has made us very sophisticated at negotiating care, including our understanding that both offering and receiving it is a choice. The idea of consent in care is a radical notion stemming from disabled community wisdom. Ableism mandates that disabled people are supposed to gratefully accept any care offered to “fix” us. It’s mind blowing for many people to run into the common concept in many sick and disabled communities, that disabled people get to decide for ourselves the kind of care we want and need, and say no to the rest. This choicefulness has juicy implications for everyone, including the abled.”
I love her wording here. The juicy implications of choicefulness! Imagine the possibilities of this.
And yet, even as I revel in this juicy and nourishing framework, I remember my own deep and ongoing struggle with the concept of pain, illness, and disability as invitation, as superpower, as self. This radical reorganization of labour within relationships does not come easily, and one of the reasons it’s so challenging is because our concepts of fairness are so influenced by one to one exchanges.
Piepzna-Samarasinha addresses this fear later in the essay, reminding us that, “Disabled people often run into the idea that we can never offer care, just receive it. However, we often talk about the idea that we can still offer care from what our bodies can do. If my disabled body can’t lift yours onto the toilet, it doesn’t mean I can’t care for you—it means I contribute from what my particular body can do. Maybe instead of doing physical care, I can research a medical provider, buy groceries for you, or listen to you vent when one of your dates was ableist.”
We forget that there is still care, still reciprocity available within our relationships even when our ability to perform the tasks we used to, or the tasks we wish we could, has shifted.
Learning how to navigate this shift is challenging.
Searching for resources to share in this post, I was discouraged by the sheer volume of academic research performed by normatively abled “experts” on the outcomes for relationships that include a disabled partner. Once again, the centre scrutinizing the margins. It creates such a disempowering framework.
I was also dismayed by the fact that “should I date a disabled person” was one of the suggested related searches. Gross! GROSS!!!!
These are the narratives, and the social framework, within which we try to navigate our relationships as pain/illness/disability-enhanced individuals.
We need more robust, inclusive, intersectional, and hopeful resources. Not hopeful in the “look on the bright side” gaslighting-via-silver-lining sense. Hopeful in the sense of possibility-generating, hope that, in Sara Ahmed’s words, “animates a struggle.” Hope that reminds us that there are narratives possible outside of the ableist norm, and that we can write those love stories within our own lives.
The parts of ourselves that do not fit tidily into the ableist ideal show up in our relationships in many ways. In order to write those inclusive love stories of any kind – platonic, romantic, familial, or parental – we need to recognize and learn to navigate all of it. Financial, social, emotional, physical, mental – very aspect of ourselves that requires tending and care.
Chronic illness/pain/disability impacts our financial lives – we are often less able to work within normative capitalist models. The 8-5 grind doesn’t work if you can’t manage a desk job for 9 hours a day, and many other jobs are also out of reach. This adds pressure to our partners and social supports. Money is a huge source of shame and fear for many of us, so learning how to talk about requiring financial support, how to shift the balance of contribution in a household – overwhelming! Be gentle with yourselves in these conversations.
I find this particularly challenging. More than almost any other way in which my chronic issues impact my relationships, the financial instability that has been introduced as a result of my no longer being able to work a full-time job feels humiliating and shameful. I am working hard to carve out a living for myself, to build my business in sustainable and anti-ableist ways, to do what has to be done to pay my share of the bills. But my partners still take up more than what feels “fair” in the financial realm, and it’s hard. For me, engaging with writers, activists, and advocates who are challenging capitalism and neoliberalism has been helpful. Recognizing that there are other economic models available has opened up some space for me to still see myself as a contributing member of my partnerships and society.
Chronic illness/pain/disability also impacts our social lives – getting out to see friends can become more challenging. Our partners can end up taking on more social caring work for us, being the ones we talk to when we aren’t getting out (or when we don’t feel safe to talk about our struggle with others).
The aggressive individualism of our current anglo-european culture means that we are often isolated, and this can be so discouraging. Again, I struggle with this personally and I don’t have easy answers.
And searching for resources on parenting with chronic pain, illness, or disability is similarly challenging and disheartening. Parenting with any kind of divergence from the ideal is difficult. The weight of judgement, assumption, erasure, hostility, and isolation is so real. Although more supportive and inclusive blog posts, research papers, and articles are being written, the perception of a weirdly-abled parent is still one of lack, inability, and pity.
We often want to provide everything our children needs, without outside help. That’s the expected ideal. The nuclear family is still the celebrated norm, and the ideal of a normatively abled, neurotypical, stay-at-home, biological parent is still the target to meet. We may recognize that “it takes a village” but we resist the idea that part of what that village offers may be physically chasing after the toddler, lifting the baby, doing homework with the teen, helping with the rent. Just like we need to expand our conception of emotional labour and economies of care within relationships, we need that same expansiveness and redefinition within our parenting relationships and roles.
Which is easy to say, and incredibly hard to do.
At Disability and Representation, Rachel Cohen-Rottenberg writes, “What so many able-bodied feminists don’t get is how profound an experience disability is. I’m not just talking about a profound physical experience. I’m talking about a profound social and political experience. I venture out and I feel like I’m in a separate world, divided from “normal” people by a thin but unmistakeable membrane. In my very friendly and diverse city, I look out and see people of different races and ethnicities walking together on the sidewalk, or shopping, or having lunch. But when I see disabled people, they are usually walking or rolling alone. And if they’re not alone, they’re with a support person or a family member. I rarely see wheelchair users chatting it up with people who walk on two legs. I rarely see cognitively or intellectually disabled people integrated into social settings with nondisabled people. I’m painfully aware of how many people are fine with me as long as I can keep up with their able-bodied standards, and much less fine with me when I actually need something.
So many of you really have no idea of how rampant the discrimination is. You have no idea that disabled women are routinely denied fertility treatments and can besterilized without their consent. You have no idea that disabled people are at very high risk of losing custody of their children. You have no idea that women with disabilities experience a much higher rate of domestic violence than nondisabled women or that the assault rate for adults with developmental disabilities is 4 to 10 times higher than for people without developmental disabilities. You have no idea that over 25% of people with disabilities live in poverty.”
So that fear of embracing a new normal, subverting the neoliberal individualist norm, creating new economies of care and radically altering our relationships to be just rather than equal… this doesn’t happen in a vacuum. We aren’t just subverting norms and creating new relationship methods – we are doing so, as parents, under the scrutiny of an ableist and highly punitive culture. We are conscious of the fact that our subversion of norms, which may be possible within adult relationships, may make our parenting relationships more precarious, more tenuous.
Access to external help is readily available to the professional upper class – nannies are a completely acceptable form of external help, and parents are not judged for needing a nanny when that need is created by long working hours. Needing help in order to be more productive? Sure thing. (You’ll still face judgement, of course. Can any parent do it “right,” really? Nope.)
But needing help because of pain, illness, or disability?
That is much less socially sanctioned, and there are far fewer narratives available that leave space for that choice to be aligned with a “good parent” identity.
And yet, many of us do parent while in pain, while ill, while disabled. And we are good parents. Just like we have valuable superpowers of caring that can be brought into our adult relationships, we have the same superpowers of caring to bring into our parenting roles. What we do may look different than the pop culture ideal. How we do it, when we do it, who helps us with it – that might all look different. And that’s scary. But the value it brings to our kids is immeasurable.
One of the invitations that chronic illness, pain, and disability extends is that it pulls the curtain back on how harmful the neoliberal ideology of rugged individualism really is, and asks, “is there another way?”
I’m not great at saying “yes” to that invitation, but I’m getting better at recognizing it when it shows up. I don’t need to have all the answers, because I have a community around me that is brilliant and incredibly generous.
So, when I was struggling with this post, I asked my best friend and one of my partners to help me.
H.P. Longstocking has been dealing with the long-term effects of two significant concussions, and in a moment of discouragement at my own inability to write this post, I asked if she could help me get started. What she sent touched on so much of what I wanted to write about, so eloquently, and I’m ending this post with her incredibly valuable contribution. She is a parent, a scholar, and an integral part of the social net that keeps me going. I think there’s hope in how she has responded to this.
While I am no stranger to depression or anxiety, I had never experienced a chronic debilitating illness and I found that my self-care habits and techniques were no longer usually helpful or even always possible. Last summer I had several concussions. Because I had sustained so many as a child, these two accidents completely changed my life. Most of the summer I was not safe to drive or even walk as my second concussion happened when I tried to walk out of my bedroom and due to the concussion symptoms, I cracked my head into a wall. I could not look at screens, read, handle light or loud noises, and was told to stop having sex. All of my self-care habits were taken away.
I have always been an active person. Running and cycling have been my times of meditation and recalibration. Dancing brings me joy. Physical activity has been an integral part of my self-care since I was a small child. To have days, weeks, and months where walking short distances is the most physical activity I can safely manage, and some days not even that, has had a detrimental impact on my body and my emotional well-being.
I used to love to read. I devoured books and articles. I had just started my Masters and was supposed to be immersing myself in the scientific literature. I could not do any of that. I still struggle. Reading was my escape, my lifeline, my lifeblood, and I hoped, my livelihood. Now it causes me pain.
I was not prepared for the constant, chronic pain. Previously, I had headaches so rarely, I did not recognize them the few times a year I would experience one. Now, I have a hard time recognizing it because I am never without one. I find that I have my face screwed up in pain after someone reacts to me as if I am scowling at them. My coping mechanisms for the pain are to hyperfocus on something so I am unaware of most of the world around me. Unfortunately, this is usually my phone which in the long term makes it worse, but also as it gets worse, I have less self-control and ability to stop myself.
All of this has impacted my relationships. Without the ability to drive, I am often limited in who I can see and where I can go. Even without that, I am easily tired in social settings and my words begin to slur in mental exhaustion. I cannot handle loud spaces for very long, or if I do, I pay for it with days of recovery. I often feel isolated, alone, and incapable of taking care of myself, let alone being the partner, parent, and student I aspire to be.
But, I have adapted. Instead of reading, I listen to audiobooks. Instead of digesting dense theory or the latest studies, I listen to light narratives and fiction that has a plot so predicable that I can fall asleep and not miss much. I go for short walks instead of long bike rides.
My relationships have also changed.
It is hard to feel like you are not carrying your weight, especially in this neoliberal culture where people are valued according to how much productive and profitable output they can do. It is hard to be a partner with someone when you are more dependent and roommate than lover. It is hard not be able to see people, leave the house, focus on what someone is saying, or do what they are doing. It is so isolating and would be so much more so with poverty added as well. It hurts to see your kids do an impression of you which is just sleeping.
My friendships have changed. I am slowly learning to ask for help. To say no. To cancel plans last minute because it is not safe that day for me to go out. I cancel plans so often now that I am scared to make them. Much of my socialization now is online and sporadic. There is a price to pay for too much screen time. I am spending more time with people I do not have to hide my pain from. I do not have the resources to put up with mind games and people who suck energy. I have a few friends that make safe spaces for me to come and just nap around them so I won’t feel alone. My life is rich, even though my world and abilities have shrunk.
Self-care looks entirely different to me now. Instead of the sun on my face and the pounding of my feet on running paths, I sip tea wearing sunglasses. Instead of pushing through discomfort, I am learning to listen to it so that I do not make things worse. Instead of losing myself in the written word, I find comfort in story, sound and other sensory delights. Some of the people I spend time with have changed, and the ways I spend time with people have also. I do not know which symptoms will resolve and which I will have for the rest of my life, but while I grieve for friendships and opportunities lost, I am also grateful for the capacity to change and adapt, and trust that relationships worth holding onto can withstand the changes as well.
Further reading on emotional labour:
- Wondering about women’s differential experiences of pain? Check out the trans-inclusive Popaganda podcast on Women and Pain.
- And this Everyday Feminism article on how emotional labour defines women’s lives will give you insight into women’s experiences of differential expectations of emotional labour.
- And, if you want to challenge the gender disparity regarding emotional labour in straight relationships, check out 7 Ways Men Must Learn to Do Emotional Labour in Their Relationships.
- It’s also important to bring an intersectional lens to any discussion of emotional labour, and this article on Emotional Labor, Gender, and the Erasure of Autistic Women is both an excellent article on its own, and full of worthwhile links out.
- The Emotional Labour of the Closet: A Look at Trans Women’s Socialisation touches on the specific emotional labour that trans women are expected to offer.
- And we can’t discuss differential expectations of emotional labour without acknowledging misogynoir and the demands on Black women to be caregivers for their own communities and the white communities around them. Misogynoir and Black Women’s Unpaid Emotional Labour touches on this issue.
- And then, tie it back to chronic illness, chronic pain, disability. Disability and Emotional Labour talks about these issues, and although it’s an article related specifically to activism, it comes into our lives and relationships in many ways.
Today’s #stickfiguresunday is all about the complexity of self-care and the many factors that have to be considered. Self-care is so much more than any one action, or set of actions.
Self-care includes long-term, short-term, and emergency actions. It includes individual, communal, and structural action. It is soft and easy, *and* hard and demanding.
Self-care is always dependent on our available resources – social, emotional, financial, physical. Self-care also depends on our histories and our particular intersections of trauma, oppression, and privilege.
We are always practicing self-care – people are *always* responding to their struggles and challenges, even when those responses are not socially acceptable or recognizable as self-care.
One definition of self-care, the one that I use, is that self-care is any action that honours our needs. This includes actions that may not be sustainable long-term and that may not be socially sanctioned – self-harm, addiction, dissociation, and others.
One definition of sustainable self-care, which I use, is that sustainable self-care happens when we bring awareness, compassion, and intention to these actions.
Many of the ways we talk about self-care are geared towards financially privileged cisgender white women, and these exclusions and erasures can be so hurtful. Our conversations need to expand, our definitions need to develop depth and nuance.
Community care is a critical part of self-care – so we need to keep asking, which communities are being left out of these discussions? How can we deepen and extend the conversations? How can we honour and acknowledge the self-care that is being practiced by poor, fat, neurodivergent, racialized, traumatized, and otherwise marginalized folks?
Image description: A stick figure stands. A thought bubble reads, in colourful text – social? emotional? physical? financial? mental? creative? trauma? spiritual? collaborative?
Below the thought bubble in various shades of green – What IS self-care? How can we practice self-care? How do we talk about self-care?
Image description: A picture of a forest. Text below reads You Are Not Alone Stories, thoughts, and resources after the loss of a pregnancy or child Created for Pregnancy and Infant Loss Awareness Day | 2017
Today is Pregnancy and Infant Loss Awareness Day.
Ten days ago, one of my friends noted that the available resources were incredibly gendered, heteronormative, cisnormative, and overwhelmingly white.
Creating resources that help serve the margins is exactly the goal of my Patreon, and it’s why I do what I do, so we came up with a plan, reached out to contributors, and spent the last week and a half pulling together something that I am really proud of.
This resource is not perfect. It’s a first draft, and it’s not as inclusive as it needs to be. Our goal is to reissue the resource each year with an expanded selection of personal stories, and a refined resources section. If you would like to have your story included in the next issue, let me know.
You Are Not Alone
Stories, thoughts, and resources after the loss of a pregnancy or child
Created for Pregnancy and Infant Loss Awareness Day | 2017
This document was created as a response to loss resources that are highly gendered, and that implicitly assume their readers are straight, white, and cisgender. It was also created to try and provide something free and easily accessible.
It is a first draft, and we hope to reissue this document yearly with more and better information and resources.
Although this resource attempts to be intentionally inclusive and anti-oppressive, the two primary collaborators – Tiffany Sostar and Flora – are both English-speaking white settler Canadians, with stable housing and strong social supports. Our privilege means that we are missing nuance, and we do not see what we’re not seeing. We are open to being corrected, and to hearing from people who do not see themselves represented in this document. You can reach Tiffany at firstname.lastname@example.org.
This document is designed to be a grief and loss resource, and we have included abortion stories and resources. However, we recognize that not every abortion is experienced as a loss or followed by grief. (This is true for miscarriages, too!) We also recognize that it is possible to feel grieve without feeling regret, and this is true for any pregnancy loss, whether it’s abortion, miscarriage, stillbirth, or adoption.
We are so thankful to the individuals who contributed to this document. Our call for contributors was met with courage and generosity by people who shared their stories despite the pain that telling the story brought up for them.
We are also thankful to Andi Johnson and Randi van Wiltenburg, both full-spectrum doulas in Calgary, Alberta, who contributed not only their personal stories but also a wealth of knowledge and information. Their professional contact information is listed in the resources section.
Parents we want to honour:
- Those who have lost a child to miscarriage
- Those who have lost a child to abortion
- Those who have lost a child to stillbirth
- Those who have lost a child after birth to medical illness
- Those who have lost a child after birth to adoption
- Those who have lost a child after birth to structural violence
- People of any gender identity
- People of any sexual orientation
- People of any relationship status and structure
- People of any race or culture
- People of any state of mental or physical health
- People of any religious belief
- People of any socioeconomic status
Download the 60-page PDF here.
(Image description: A cloudy sky with reflecting sunrise light is seen through tall trees. Photo was taken by Stasha Huntingford.)
A Year of Sacred Attendance #tenderyear
We are nearing the end of #100loveletters.
Would you like to do another thing after that?
This was the question Nathan Fawaz posed to me, and the answer was an easy and enthusiastic “yes!”
The 100 Love Letters project has been transformative for me – it has been a thread of connection back to myself during a summer that included too much travel, too much stress, too much emotional upheaval, too much existential dread. The love letters were a daily reminder to sit down and breathe into a space of compassionate self-awareness. The letters were permission to take time, even five minutes at the end of the day, to love myself in the middle of the hard weeks and the bad weeks and the overwhelming weeks. They built space into my day, and gave me new tools for self-care and new methods for engaging my narrative. (You can find the posts related to this project here, and the PDF will be added to this section as well.)
The 100 Love Letters project was also an opportunity to build community, and I have appreciated the new friends I’ve made as a result of the project, the connections that have grown and strengthened as we witness and support and encourage each other through the process.
The 100 Love Letters project will continue on in various iterations – Nathan will be presenting their 101st letter at an event on October 14 (you can find out more about that event here), and I will be putting together a PDF that will be available for free download on my website, with prompts, encouragement, and a “how-to” section. (I’ll still be available to support anyone who started the project on a different day, too. You can always email me or find me on Facebook or Instagram!) I’m even working on a book proposal about the project!
But the 100 Love Letters project, in its original form, is coming to an end today, September 29. It’s 100 days since we launched at the beginning of the summer, and it has been a beautiful journey. It’s time for those of us who started our 100 days a season ago to shift into something else.
If you want to shift with me, consider this an invitation to a Year of Sacred Attendance.
This project, co-created by Nathan, Stasha, and myself, is that ‘other thing’ that was gestured into being with Nathan’s question. I think it will be amazing.
We started from another of Nathan’s ideas. They had said, “One thing that is coming up for me is the idea of attention, attendance.”
Being present with ourselves, attending, bringing attention, and tending to ourselves – that’s one of the most powerful elements of the love letter project. We each wanted to maintain that spacious, gracious sense of intentional, compassionate attendance. And we wanted to push gently against the edges of other aspects of our lives that could benefit from this kind of compassionate, intentional, regular tending.
Around Stasha’s kitchen table, the framework for a yearlong project coalesced. It was, and is, a collaborative project generated by the powerful narrative spellwork of the three of us, but we remain individuals within the project and we are so excited to share the project with as many of you as want to join.
The Year of Sacred Attendance will run from October 1, 2017 to September 30, 2018.
Each day of the week has a unique focus. You can participate in all of them, or pick and choose the ones that resonate for you. We will be using #tenderyear for every post related to the project, with daily tags as well (to make it easier for folks to find each other on Facebook, Instagram, and Twitter).
Meditation to Challenge the Binaries. #challengethebinary
Meditation is a flexible form here – the goal of this day is to invite participants to think about binaries, opposites, exceptions, and subversions. Think of Venn Diagrams, exceptions that subvert the rule, grey areas that provide productive space for expanding and exploring our narratives. On Sundays, we look at The Normal and The Other, and we grapple with that. We look at The Thing and The Opposite of The Thing. You can engage with this focus through art, writing, or any other method that helps you dig into the topic.
Attending to the Questions. #questioneverything
A significant focus of this project is inviting and facilitating compassionate self-awareness. You can ask yourself whatever questions feel right for you – the focus of Monday is simply to take time to ask yourself how things are going. If you’re not sure what to ask, here are some sample questions, and you can answer whichever feel right for you. Not everyone participating in this project will be working on creative projects, and not everyone will feel comfortable with a goal of presence – trauma is a real factor in many of our lives, and can make presence a real challenge. These are just a place to start:
What are you creating?
What do you need?
Do you feel present?
Could you try something different?
What are you wondering about?
Love Letter #100loveletters
We wanted to keep the focus on self-compassion, self-acceptance, self-care, and self-love. The 100 Love Letters project continues on in the Tuesday focus.
Drop Into A Moment #wednesdaymoments
Find a moment to fully experience. This focus is about sensory awareness, mindfulness, presence, and about paying attention to our lives. You can participate in this through art, writing, photography, or simply pausing to observe yourself as a physical being within a physical world.
As Above So Below #fiveelements
Thursday’s focus builds on the physical presence of Wednesday, and is about connecting to the world around you.
Friday’s focus can take so many forms. Reflect on your week, reflect on your relationships, post a selfie, take a picture of a reflective surface – the beautiful thing about reflection is the many ways it can be interpreted.
Affirmations for yourself, for your communities, for the world. What do you need to hear? What do you need to affirm for yourself or for your people?
The #tenderyear project is open to anyone to participate, and participation can happen online or offline. Participating online can happen privately in messages or between friends, or publicly. We will be using the #dailypractices and #tenderyear hashtags throughout the posts.
There is an email list, similar to the one that was available for the #100loveletters project. You can sign up here. I’ll be sending out mostly-weekly emails with prompts, links to blog posts, interviews with participants, and encouragement and support. There will also probably be give-aways, like the handwritten letters that were sent out to Love Letters participants.
To give you a sense of the what and why and who behind this project, here is a mini roundtable with the co-creators.
How did this project start?
Stasha – For me the 100 love letters made sense as resistance to oppression, and as a lifesaving intervention. When Nathan and Tiffany also participated in the 100 love letters, it opened up a space in my heart. I was able to cheer on their resistance and to witness them both weaving powerful magic in inspiring their communities. I think after feeling that daily magic, all of us knew that sharing and sustaining this magic is vital. Loving ourselves is a revolutionary act, supporting each other with this even more so. I spent so much of my life stigmatizing parts of me that had been shamed by society, I didn’t survive 37 years to live in shame. I survived by transforming my pain into empathy and learning. This project assists me in that alchemy, a most sacred healing magic.
Nathan – Somewhere between letter sixty and letter seventy-five, I noticed this sensation within me… the sensation had been there since the very first letter, really, but it took me a while before I could identify it… anyway, I noticed this sense of space. That’s the best word I have to describe it. This sense of space. And, at the same time, I really began enjoying in the community that was emerging as part of #100loveletters. As I got closer and closer to letter 100, I found myself wondering what I could do to help support the spaciousness I was just starting to find for myself. And how can I help nourish this connectedness I was observing.
Tiffany – Just like the #100loveletters project started with a “Yes! Can I do that too?” in response to Stasha’s original post about her project, this new project starts, for me, with a “Yes! Can I do that too?” in response to Nathan’s “Would you like to do another thing?” In both cases, I felt like I was being gifted a new tool to expand my self-care practice, my community care practice, and to share with the individuals and groups that I work with.
Stasha said, “Loving ourselves is a revolutionary act, supporting each other even more so,” and Nathan said, “[What can I] do to help support the spaciousness I was just starting to find for myself, and how can I help nourish this connectedness I was observing.”
These two origin stories for the project echo and overlap with my own – this project, for me, starts with trying to open up space for self-love and self-compassion, for myself and for the people around me, and to support and foster connectedness and love within my communities. It fits so perfectly with the work I want to do as a self-care and narrative coach, it feels like a gift. Two gifts! (Which is totes a double entendre because I am referring both to the two projects AND the two people. Clever!)
What do you find exciting about this project?
Stasha – Everything. The sacred belonging and acceptance that I already feel is amazing. I love working with people who understand how tenderness can bring down oppressive systems. What could be more radical than tending love in this world? Already we have done so much by creating a public space where we celebrate insanity as necessary for problem solving and community building. We have made a place that includes our hearts, our fears, our bodies, our chronic illnesses, our genders, our minds, our ptsd, our communities, our joy, and our pain. One of the most painful things about participating in groups, is that often parts of me are not welcome. This project allows me to participate as a whole person, which helps me nurture love.
Nathan – Everything. I am excited by its potential for compassion, and self-compassion. I am excited about its accessibility. I am excited to make this commitment in community, both online and in person. I’m excited for the container of this project. And I am curious to see what it will hold.
Tiffany – I am excited by the idea of making space for ritual and for the sacred in my life. I think it’s possible to engage with this project without ever engaging with any kind of spirituality or sense of the sacred, and that would be totally valid, but for me… I have been writing about, talking about, thinking about, and longing for a sense of ritual and connection for a long time. But I haven’t done the work to create space for ritual in my life – I’m always too busy, I’m always too scared of doing it wrong. I love that this project is flexible, expansive, and that it offers opportunities for sacred ritual but also for goofiness and lightness. And, a year is a long time. I’m excited about the opportunity to go through the first exciting month or two, and then the drudgery when it gets old and weighs more, and then the renewal when I find the excitement again. A year is long enough to cycle through a few times, and I’m really looking forward to that. I’m looking forward to helping others through that cycling, too. That’s been one of the most rewarding things for me about the love letters project.
Who would you like to see participating in this project?
Stasha – Honestly, I think we all need this kind of love in our lives. I hope to model a year long spell of mindful intent, and learn from others as I go.
Nathan – I am interested in anyone participating in this project who is drawn to participation. There is no outcome. No certificate. It’s a process. Mostly gentle and generative and sometimes takes the long way to get to gentle.
I am most interested to see who will find themselves a small home in the space of this project. Who will tend toward it.
Tiffany – I would really like to see anyone who feels lonely, alienated from their own heart, scared to connect with themselves, struggling with shame and anxiety and fear of failure and fear of success – I would like all the queerdos and weirdos and sad pandas to find this project and find community and support and a way to connect back to themselves, to centre themselves in their stories, to renew themselves through this year of attendance with themselves.
What are you hoping to get out of this project?
Stasha – I am working on the theme of listening for this project. I struggle with interrrupting people, and asking rapid fire questions without listening to the answers. I work on this because I want to be more respectful of other people, and I want to learn from them. I value being listened to, and I want to give others the same gift. This work will help me to survive in an oppressive world. It also improves the world by focusing on connection, and trying to understand the world by changing it. I believe that the focus on how we are part of the earth, is vital in these times where that connection is denied. The practice of tending must be tended, us doing that together is very powerful.
Nathan – I am hoping that through this project, and the gentle tending of it, that my own rhythms, interests, way of dreaming, way of loving, further emerge into the space that they need.
I am curious to see what will happen.
Tiffany – One million new followers. Just kidding! Not totally kidding. I am hoping to build my base with this project, by offering support and resources and encouragement. But I am also hoping to find space for myself within the project. I want to find that sacred ritual.
This is a Patreon reward post, and the first draft of this post was available to patrons last week. At the $10 support level, I’ll write a self-care post on the topic of your choice during your birthday month. And at any level of support, you’ll get access to these (and other) posts early.
This one’s for Stasha, who has been one of my most active supporters and cheerleaders. I appreciate her comments and insight so much. She was also the inspiration for the #100loveletters challenge that I’m currently running, and her willingness to be visible in her experience of working towards self-love is empowering an ever-widening circle of participants in the challenge and beyond.
Her requested topic was visibility, and the complexities of doing self-care while invisible or hypervisible.
These are two sides of the same issue –
Being invisible – having parts of your identity illegible and unrecognizable and unacknowledged by the people around you – can make you feel crazy and alienated from your own experience. Invisibility can become a deeply damaging, traumatizing experience of being gaslighted by the entire society around you.
Invisibility takes many forms. Often, invisibility brings the double-edged sword of ‘passing’ – we are invisible (in whichever of our identities is unwelcome in the context) and that invisibility causes incredible internal harm and pain while also granting us conditional privilege as we appear to belong to another, more welcome, more acceptable, more safe, group. Passing as straight. As cisgender. As white. As neurotypical.
There are so many identities that become rendered invisible in most contexts. Where the assumption of normativity – the assumption that we fit society’s definitions of “normal” – is stifling. Crushing.
Queer invisibility – the harm felt by queer folks in heteronormative spaces, where we are automatically assumed to be heterosexual. Our queer identities are erased by the assumptions of the people around us. It hurts. We have to choose, each day, in each interaction, which hurt we want to experience – the pain of erasure, or the battle of fighting to be seen. Do we come out? Is it safe to come out? What are the consequences of coming out?
Trans invisibility. The experience of trans men and women who ‘pass’ – who are perceived as their gender and assumed to be cisgender – often have their transness rendered invisible unless they come out, and this can be both painful and comforting. Sometimes at the same time. Is it safe to come out? Is it safe to get close to someone without coming out? (Passing is a hugely contentious and fraught issue.)
Non-binary trans invisibility is a whole other issue, and one that I can speak to more personally. I am ‘read’ as a woman in every context except those ones where I have explicitly and decisively come out as genderqueer, and even in those situations, the illegibility of my identity is often clear. I’ve said the words “I am genderqueer – I do not identify as either a man or a woman” and have still found myself lumped in with “us girls” or “the ladies” or whatever other assumptions of womanhood people have, even by people who have heard me come out and have acknowledged the validity of my identity. They are trying to see me, but they just… can’t. Don’t. Won’t?
Femme invisibility within the queer community – the assumption that women with femme gender presentations are automatically straight. Also within the queer community, bisexual invisibility – a huge issue that remains pervasive.
Invisible disabilities, both physical and mental. Invisible neurodivergences, and the incredible pressure on neurodivergent communities to ‘pass’ as neurotypical. (The fact that we consider it a marker of success if an autistic kid is able to get through a class and “you’d barely even know they’re autistic!” is such a problem.)
And other invisibilities, invisibilities of experience – the invisibility of addiction and the experience of being sober within intoxication culture (many thanks to Clementine Morrigan for that phrase), the invisibility of childhood poverty in academic and professional contexts, the invisibility of trauma.
One of my heroes is Amanda Palmer. In her book, The Art of Asking, she said that so much of her artistic life has been spent saying, over and over, in song after song, performance art piece after performance art piece, in every way, again and again – “see me, believe me, I’m real, it happened, it hurts.”
I saw her live at one of her kickstarter house parties, and she was talking about the experience of being a woman and being tied to reproductivity – that question of children being a defining question. Another person in the audience, a genderqueer person like me, but more brave than I was, pointed out that not everyone with a uterus is a woman, and not every woman has a uterus – that this experience is not tied so tightly to gender. Amanda Palmer blew past the question, erased it, made a comment about how if you have a uterus then you are a woman and you will have to deal with these questions.
It wasn’t malicious, but it was violent – invisibility is not neutral, it is not passive. Rejecting someone’s effort to be seen is never a neutral act. Being made invisible in that way, particularly after making the effort to be seen, hurts. It hurts a lot. It took me a few years after that to be able to listen to her music again, and I just started reading her book this week.
(It’s a separate issue – the necessity of making space for imperfection. The story is relevant, but the healing process is a post for another time. Amanda Palmer is not perfect but I still find so much value and even validation in her work. This is one of the most exhausting challenges of having invisible identities – we still need community among the people who can’t, or who won’t, see us.)
So, how do you do self-care while invisible?
And what about self-care while hypervisible?
Hypervisibility is a separate but related issue.
Hypervisibility is when, rather than being assumed to be part of the normative group, you are visibly Other and that otherness becomes your defining characteristic. It is as much an erasure as invisibility – you lose the nuance of your whole and complex self. When people see you, they don’t see you – they see your visible characteristics and don’t move past that.
Most often, hypervisibilities are written on the body. The colour of your skin. The sex you were assigned at birth. The size of your waist. The movement (or not) of your limbs.
I don’t experience hypervisibility very often – I’m white and thin, with class, language and educational privilege that helps me blend into most environments, and my disabilities are all invisible (unless I’m trying to be physically active). When I do experience hypervisibility, it is in contexts where my assigned sex or my gender presentation are conspicuous – primarily cis-hetero men’s spaces.
Hypervisibility brings the threat of violence. Racist, transphobic, homophobic, and sexist violence can all be sparked by the wrong person seeing you and seeing you. Violence against fat and disabled people is similarly tied to hypervisibility. Violence against homeless or visibly addicted people is similar.
Hypervisibility doesn’t offer the option of passing, and the fight is often chosen for you – rather than choosing between the harm of erasure and the harm of exposure, hypervisibility means constant, constant exposure. They don’t make an SPF high enough to protect from that.
It is possible to experience hypervisibility and invisibility at the same time – to be a Black queer femme. To be bisexual in a wheelchair. To be non-binary and homeless. In those moments of compounding erasure – one identity hypervisible, every other identity erased – self-care becomes even more challenging.
Self-Care and Visibility
It is an incredibly difficult thing to be a loving mirror for yourself when all around you are mirrors that either don’t see you, can’t see you, or only see some parts of you. But that is the core of self-care and visibility – the ability and the necessity of finding a loving mirror within yourself and within your communities.
Find that one friend who sees every part of you.
Be that one friend who sees every part of you.
Get to know yourself.
Get to know every part of yourself – the invisible bits and the hypervisible bits. Write it down. Make a list of all the things you are, and solidify yourself for yourself.
It can help to take a page from narrative therapy and write yourself a small Document of Authority that states who you are, and to keep it with you as a talisman in situations when you know you either will be invisible or hypervisible.
Another self-care strategy is to practice recognizing, naming, and countering the gaslighting that comes with both invisibility and hypervisibility. Start to notice when people make statements that assume you are something other than what you are, or that flatten you down to a single identity. Note them, name them (out loud or just to yourself) and counter them with the truth.
Speak yourself into being, and into complexity.
It is the hardest thing in the world.
It’s why representation matters so much.
But I believe in you.
I know that you are real, and that what you have experienced is real, and that what you are is real and valid.
You are the expert in your own experience.
You know who you are, even if you can’t access that knowledge consciously yet.
Hypervisibility: How Scrutiny and Surveillance Makes You Watched, but Not Seen, by Megan Ryland at The Body is Not an Apology. This post is brilliant, and is part of a two-week series that ran on the blog in 2013.
The 5 biggest drawbacks of hypervisibility (and what separates it from the constructive visibility we need), by Jarune Uwujaren at Resist. Another great post that clearly outlines the harms of hypervisibility and the double-bind of being expected to be grateful for being seen.
Hypervisibility and Marginalization: Existing Online As A Black Woman and Writer, by Trudy at Gradient Lair. Trudy’s work revolutionized my understanding of misogynoir and the specific issues facing Black women. Her writing is excellent, and this post is no exception. (She no longer blogs at Gradient Lair but has generously kept the content available there.)
Queer Like Me: Breaking the Chains of Femme Invisibility, by Ashleigh Shackleford at Wear Your Voice. There is so much to love in this post (and many of the posts on this site).
10 Ways to Help Your Bisexual Friends Fight Invisibility and Erasure, by Maisha Z. Johnson at Everyday Feminism.
The Importance for Visibility for Invisible Disabilities, by Annie Elainey. I rarely link to videos (because I dislike watching videos most of the time), but Annie’s are absolutely worth watching. Her engagement with disability, and so many other issues, is fantastic.
(I am so thankful for the work of women and femmes of colour who have generously offered their insight and wisdom and emotional and educational labour to create these resources. Many of these content creators and sites are reader-funded, and if you’re in a position to support them, that’s rad!)
(Image is from gratisography.)
This is (sort of) a Patreon reward post. At $5 support per month, you, too, can have a personalized post on the topic of your choice during your birthday month! Because this topic ended up generating so much meaningful discussion about ageing, rather than trying to cram everything into a single post I have expanded it into a three-part series. All substantial blog posts are released to Patreon patrons one week early.
This is Part Two of the three part series. In Part One, we talked about the fear of ageing, and how to care for ourselves through those fears. Part Two is about the joys of ageing. Part Three, on the topic of fear of death and end-of-life preparation, will be next.
I struggled with writing this second post in the series. So often, an acknowledgement that joy is possible becomes weaponized – rather than gesturing towards a possibility, joy becomes an obligation.
Because so much of our culture, particularly in the self-help and self-care communities, focuses so hard on “manifesting” positive outcomes through positive attitudes, with the corollary victim-blaming coming along for the ride, I find myself hesitating even to talk about joy for fear of how it will be interpreted and how it could be turned as a weapon against the vulnerable, the hurting, the fearful among us.
The vulnerable, the hurting, the fearful – these are my people. Although I am a playful, sparkly, joyful person, I identify strongly with the parts of me that are almost always fearful, almost always hurting. My joy is a sparkle in the dark, rather than the other way around.
And so, part of my resistance to this second post was also my own cognitive distortions – my tendency towards all-or-nothing thinking (if joy is possible, then joy is always right and fear is always wrong!); my internalized victim-blaming (if I could just be happy, then I would be happy!); my fear of joy. Brené Brown writes, “I think the most terrifying human experience is joy. It’s as if we believe that by truly feeling happiness, we’re setting ourselves up for a sucker punch. The problem is, worrying about things that haven’t happened doesn’t protect us from pain.”
Although Brené Brown’s description of fearful joy is not universal, it certainly does ring true for me, and is part of why I often hesitate to embrace joy in my own life. Letting go of the fear feels as if it will open me up to tragedy. If I am constantly afraid, maybe I won’t end up hurt?
But is it not possible to fully engage with the range of responses I got from people without engaging with the joy that some of them expressed. The anticipation. The freedom that they saw in ageing, and the carefree delight of it. An honest engagement with my research means pushing through my anxiety and digging into this rich and uncomfortable soil – the terrifying possibility that joy is lurking.
What I learned from the generous responses of the people I spoke with is that ageing isn’t all bad, and our relationship with ageing doesn’t have to be one of fear and dread. This is true despite the fact that many fears that people expressed are completely valid and grounded in the reality of ageism (and the many other intersections of marginalization that exacerbate the impact of ageism), as well as real economic and social threats. Some people are able to see the positive sides of ageing, regardless of the scary things.
This joyfulness is not solely the realm of the privileged. There are people facing sexism, racism, cissexism, binarism, ableism, sizeism, and many other marginalizations who still find joy in the idea of ageing, and there are many people with various privileges who view ageing with significant fear. It’s important to acknowledge that each person responds to situations in their own individual ways, informed by their culture and family of origin, their available resources (including social, emotional, mental, and material resources), and with their own unique outlook. There is no “right” or “wrong” way to approach ageing – the fear is valid, and so is the joy.
And, importantly, the fear and joy often coexist.
Emily, who also talked about fearing increased pain and loss of mobility, says, “I call grey hairs wisdom strips and love getting older and feeling more content to be myself. The growing invisibility works well with my personality too.”
Although Tammy expressed anxiety about losing physical and mental abilities and being on the receiving end of our culture’s abysmal elder care (such a common, and reasonable, fear), she also said, “On the positive side, I menopaused at 47 and am quite happy with it. I also love being able to do whatever I want as my kid is now an adult, I have no partner, and I don’t give a flying f*** what anyone thinks.”
Similarly, Nicole talked about fearing loss of mobility, but started by saying, “I quite enjoy getting older now, as I feel like I’m at the stage where I’m becoming the person I want to be, someone I (mostly) like.”
That sense of confidence and self-assurance was a theme in a lot of the joyful responses, and it makes sense. One of the benefits of ageing can be a more solid sense of self, and less concern with what other people think about you.
Nadine’s comment exemplifies this. She says, “I enjoy getting older a lot. Possibly because I don’t associate my childhood and teen years with the kind of vitality most people ascribe to “youth”. I wasn’t a particularly strong, healthy, nimble or attractive to my peers as a child or during my teens. I didn’t have much control over my circumstances. I had strong instincts but lacked the maturity, intellectual skills and verbal ability to articulate or even fully understand what those feelings were about.
The more time passes, the more I understand my mind and my body. I know a lot more about how to take care of myself and my health. I’ve accepted what I look like. I can express my inner thoughts and emotions. I have some agency in my life. I don’t love how crunchy my knees are, but apart from that, getting older is my jam!” (Nadine is a fantastic sex educator, and specializes in supporting sex positive families – coaching parents and providing resources for kids.)
Margaret also expressed joy at feeling more confident. She says, “I’m turning 44 this year. Not afraid of aging. Kind of enjoying being treated less like a sexual object and more like a social subject. Increasingly feeling competent and confident. Slightly afraid symptoms associated with aging (physical problems, etc.). A little vain about how I look as I age, but finding a style that works for me.” (Margaret is an academic activist, and when I was but a wee little researcher and had recently come out, finding her Introduction to Bisexual Theory syllabus online changed the trajectory of my academic career, and started the journey that led to my community activism.)
Andrea says, “I know I’m still quite young, but aging is something that I’ve really enjoyed. Physically and mentally, I’ve never felt a desire to go back and even tho the future is daunting sometimes it’s something I constantly crave. Physically (this is what I hear emphasized a lot from people in my life) I’m not in a hurry for things like grey hair and wrinkles but my impression of them is that when they do come I will have earned them. I think they’re cute and, like, stretch marks or scars, they’re a sign that your body has existed in time and space, and has been literally shaped by experiences.”
I really love the idea that the inevitable signs of ageing can be “sign[s] that your body has existed in time and space, and has been literally shaped by experiences” fits to beautifully with my own narrative approach to self-understanding. Grey hair (which I’ve had since my teens) and wrinkles don’t bother me, but other changes in my body, particularly related to the fibromyalgia, have really bothered me. I sat with the idea of these changes being signs of my body being marked by my time here, and although I’m still pondering it, I do think there’s something valuable in the idea.
I’m conscious of the impact of trauma on the body, and how adverse childhood experiences and histories of abuse can impact our bodies. It’s one of the things I work on in my writing workshops and coaching sessions, and it’s something I’m very interested in in my own life. Although I’m not sure where this little thread of thought will end up, I wonder if there some valuable restorying that can happen if we take our bodies’ responses to trauma and see them as signs of existence and experience.
Another factor in finding joyfulness in ageing has to do with our exposure to old people and to the process of ageing. Being around old people is one way to reduce our fears of ageing, and to recognize that life does continue past the wrinkles and walkers. (Again, this is not always true. A traumatic experience with witnessing ageing might have the opposite effect.)
Another Margaret says, “Growing up I was very close to my grandfather who is vibrant and alert and still working up until very sudden death the age of 86. My grandmother died she was 92. Ageing never seemed scary to me as they set an example of independence, connections with family friends and community, constant learning and enjoyment of life.”
A 2013 study into the perceptions of successful ageing among immigrant women from Black Africa in Montreal found that the old women identified four elements that they considered essential for successful ageing. These were social engagement, intergenerational relationships, financial autonomy, and faith.
Social engagement, intergenerational relationships, and financial autonomy are all linked to both the fears identified in Part One, and the joys identified here.
The 2014 paper, “Strategies for Successful Aging: A Research Update,” found that physical activity, cognitive stimulation, diet/nutrition, complementary and alternative medicine, social engagement, and ‘positive psychological traits’ were all correlated with a higher likelihood of ‘successful ageing’ (though this term itself is contested and complicated).
These ‘positive psychological traits’ include a wide range of qualities such as resilience, adaptability, and optimism, and the reason the range is so wide is because they are most often self-identified among people who consider themselves to be ‘successfully ageing.’
(Again, that flutter of anxiety that identifying these potential helpful traits will be turned into obligations and used to blame people for their own struggles. I think this fear is a side effect of doing so much reading in the self-help section as research for my work as a coach, and being bombarded so often with weaponized positivity!)
But rather than taking a prescriptive view of these helpful traits, I think that we can take a narrative approach and part of our self-care around ageing can include looking for the stories in our own histories that demonstrate resilience, adaptability, and optimism – the times when we bounced back, when we adapted to a new situation, when we kept our heads up despite the weight of discouragement and the times when we didn’t but we also didn’t stay down.
This feels important, because it gives the stories we tell about ourselves and about our psychological traits power and meaning, and we can change the stories that we tell even when we can’t change the situations around us. This does not mean that we can remove ourselves from the toxic soup of racism, sexism, ableism, ageism, cissexism, etc. with the power of our minds. But it may mean that we can mitigate some of the damage, and give the systems that want to destroy us a gleeful middle finger. (While also recognizing that financial security as a determinant of successful ageing is one of the cruelest things imaginable in our current context of late capitalism.)
So, what does that mean for our self-care practices?
I think that these stories of joy and anticipation can be an invitation to look for opportunities to view ageing differently. Our self-care can include intentionally looking for ways to engage with joyful approaches to ageing.
We can also start to examine our views of ageing, and look for the stories that we’ve internalized about the ageing process and about what it means to be older. Our fears are valid, but there is also joy possible.
We can try to incorporate more intentional social engagement, particularly across generational gaps, into our lives.
We can keep our brains active by allowing ourselves to be curious and enthusiastic about our interests.
And, I think, we can work at accepting our ageing bodies – seeing the beauty in these signs that our bodies have existed in time and space, and been shaped by our experiences.
Alyson Cole’s article, “All of Us Are Vulnerable, But Some Are More Vulnerable than Others: The Political Ambiguity of Vulnerability Studies, an Ambivalent Critique.” This paper is behind a (significant) paywall. If you have access to it through a library, it’s a worthwhile critique of vulnerability studies, and since I cite Brown in this post, it’s important to acknowledge and examine the ways in which her framework fails to do justice to complex issues.
On a similar theme, Rachel Cohen-Rottenberg’s essay, “Shame and Disconnection: The Missing Voices of Oppression in Brene Brown’s ‘The Power of Vulnerability’,” which is available freely on The Body is Not An Apology.
Nick Yee and Jeremy Bailenson’s article, “Walk A Mile in Digital Shoes: The Impact of Embodied Perspective Taking on the Reduction of Negative Stereotyping in Immersive Virtual Environments.” This is such an interesting study, with very cool implications for challenging our own negative stereotypes about a range of people, including elderly people. I would highly recommend reading this one.
Jeanne Holmes’ 2006 dissertation, “Successful Ageing: A Critical Analysis.” I haven’t read this whole dissertation, but I found parts of it very helpful in understanding the differences between how we conceive of successful ageing and how older people themselves experience it.